Rare Disease
Rare Diseases – A Global Concern329 DownloadsDownload Now!
Rare diseases are complex, life-long, and many have no definitive cure. People living with rare disease experience inequitable access to needed health care and require care from multiple health care teams and support services across multiple locations. On top of this, they experience fragmented care, with convoluted care journeys, largely due to the fragmented and…
Why Integrated Care for Rare Diseases matters The last day of February was chosen as The World Rare Disease Day – because it is a rare day in itself, that every four years we get an extra day. 2024 is indeed a Leap Year so we celebrate this World Rare Disease Day with special emphasis…