Webinar by Rare Barometer Voices and within the INNOVCare Project
Webinar – new survey on the impact of rare diseases on daily life!
Wednesday, September 21, 2016 3:00:00 PM BST – 4:00:00 PM BST
EURORDIS has recently launched a new survey on the impact of rare diseases on daily life.
Take part in a webinar to find out how you can participate in the survey and use the survey results for your advocacy work.
Sandra Courbier, EURORDIS Survey Manager, and Raquel Castro, Social Policy Senior Manager, will present the survey, answer any questions and inform you how the survey results will be used to improve the lives of people living with a rare disease.
This survey is carried out through Rare Barometer Voices and the Innovcare Project.
Technical tips to make sure your computer is ready for the webinar:
• Please make sure that your computer has all the correct plugins installed. Click here to check
• Take 5 min to watch this video explaining how to enable your speakers and microphone: , or view this documentation on how to connect via microphone
• Go to this test environment to test your microphone as described in the video and document
• If you encounter any technical difficulties please contact jean-marc.sfeir@eurordis.org