Webinar by Rare Barometer Voices and within the INNOVCare Project
Webinar – new survey on the impact of rare diseases on daily life!
Wednesday, September 21, 2016 3:00:00 PM BST – 4:00:00 PM BST
EURORDIS has recently launched a new survey on the impact of rare diseases on daily life.
Take part in a webinar to find out how you can participate in the survey and use the survey results for your advocacy work.
Sandra Courbier, EURORDIS Survey Manager, and Raquel Castro, Social Policy Senior Manager, will present the survey, answer any questions and inform you how the survey results will be used to improve the lives of people living with a rare disease.
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