Integrated care has often been characterised as a people-centred and community-oriented approach. Yet the field of integrated care – in policy, practice and research – has not fully embraced or understood how people-centred care can and should be built into integrated care strategies and programmes. Moreover, knowledge and evidence of the potential impact of people-centred care on integrated care is lacking.
People-centred care seeks to build the skills and resources that individuals and communities need to be articulate and empowered users of health services. It is an approach that seeks to support people to make effective decisions about their own health to achieve the outcomes that matter most to them. It enables communities to become active in partnering with care services and contributing to relevant research, education and healthy public policy. Special attention is often given to tackling inequalities by engaging and supporting the voices of marginalised, vulnerable and disengaged people.
This special collection will bring together papers that focus on empowering and engaging people and, specifically, on the role and impact of co-production and co-design in integrated care. For the purposes of this special collection, we define these key aspects as follows:
- Empowerment seeks to actively support people to articulate their goals, preferences and values and to better manage their needs – for example, in the uptake of healthier behaviours, the ability to self-manage their own illnesses, or to live independently.
- Engagement is about people and communities being involved in the planning, delivery and evaluation of health services that, for example, enable them to make choices about care and treatment options, to inform and influence strategic decision-making, and to help drive improvements in the quality of care delivery.
- Co-production represents care and support that is delivered in an equal and reciprocal relationship between clinical and non-clinical professionals, individuals using care services, their families and the communities to which they belong. Co-production implies a long-term relationship between people, providers and healthcare systems where information, decision-making and service delivery become shared.
- Co-design enables people to make a creative contribution in the formulation and solution of a health-related challenge. The approach focuses on addressing people’s needs rather than those of institutions. It goes beyond consultation since it seeks to build equal collaboration between all those affected by, or seeking to resolve, such challenges. A key tenet of co-design is that people are ‘experts of their own experience’ and so the process involves the active facilitation of engagement between people to communicate, share insights and test out new ideas.
Aims and Scope
This special collection seeks to bring together papers that focus on people-driven integrated care. Its purpose is to understand how different aspects of people-driven care can, and have, been embraced in policy and practice. The special collection seeks to bring together evidence on the impact that people-driven care has made to facilitating effective integrated care projects and programmes that enhance people’s care experiences and outcomes.
IJIC is specifically seeking submissions that examine how people-centred care influences health and wellbeing outcomes, both for individuals but also for carers, families and communities. Approaches might include improving health literacy; supporting informed choice through shared decision making and shared care planning; supporting self-management and self-care; coproduction through community participation in integrated care delivery; and codesign in partnership with individuals and communities.
This special collection is keen to receive original papers under four categories: policy papers; research and theory papers; integrated care cases; and perspective papers. Further guidance for authors can be found here!
Publication of the special collection will coincide with the 1st North American Congress on Integrated Care (NACIC1) that will be convened in Toronto, Canada, on the 5-7 October 2020.
Submission deadline: 31st March 2020*
Expected publication launch of special collection: 1st October 2020*
Accepted papers submitted by the deadline will be published in the launch of the special collection during the 1st North American Congress on Integrated Care, Toronto, Canada, 5-7 October 2020. Note that IJIC will then also accept papers for inclusion in the special collection on an ongoing basis following its launch.
The IJIC author fee is £1250 GBP (plus GST) with a 50% discount to PhD students. We also run a bursary scheme to reduce author fee costs to authors from low- and middle-income countries as well as from users and carers. No fees are charged to the publication of on thesis summaries, book reviews, guest editorials and any other papers directly solicited from the Editorial Board.
Dr Susanne Bethge Office of the Innovation Committee at the Joint Federal Committee (G-BA), Staff Unit Patient Participation, Germany
Ms Anna-Sophia Bilgeri Research Associate, University St Gallen, Switzerland
Dr Anthony Brown Executive Director, Health Consumers NSW, Australia
Dr Lourdes Ferrer IFIC Board Member, User Representative, El Salvador
Ms Jodeme Goldhar Executive Lead, Strategy and Innovation, The Change Foundation, Canada & IFIC Board Member, IFIC Canada
Prof Nick Goodwin Co-Editor in Chief, IJIC; Director, Central Coast Research Institute, University of Newcastle & Central Coast Local Health District, NSW, Australia; Chair, IFIC Australia
Ms Hannah Johnson Integrated Care Lead, Children’s Health Queensland Hospital and Health Service, Australia and Vice-President, Emerging Researchers and Professional in Integrated Care (ERPIC), IFIC
Mr Robert Johnstone IFIC Board Member, User Representative, United Kingdom
Prof Robin Miller Co-Editor in Chief, IJIC; Head of the Department of Social Work and Social Care & Co-Director Centre for Health and Social Care Leadership, Health Services Management Centre, University of Birmingham, United Kingdom
Ms Susan Sheridan Director, Patient Engagement, Society to Improve Diagnosis in Medicine (SIDM), USA
Dr Viktoria Stein Co-Editor in Chief, IJIC & Director of Education and Training, International Foundation for Integrated Care
Mr Danny Vadasz Chief Executive Officer, Health Issues Centre, Melbourne, Victoria, Australia
Ms Susan Royer Managing Editor, IJIC