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Why Integrated Care for Rare Diseases matters

By Niamh Daly Day / February 28, 2024
Why Integrated Care for Rare Diseases matters The last day of February was chosen as The World Rare Disease Day - because it is a rare day in itself, that every four years we get an extra day. 2024 is indeed a Leap Year so we celebrate this World Rare Disease Day with special emphasis… Read More

CONFERENCE ABSTRACTS: The Patient Narrative Project – Phase One

By Admin / October 17, 2017

The Patient Narrative Project – Phase One
Authors: Derick Mitchell , Clare Hudson, Tomas Carroll, Ava Battles, John Church, Anne Lawlor, Jason Last, Clare Duffy, Anne McFarlane, Claire Kinneavy, Catherine Darker, Gaye Stephens
Abstract
In 2012 the Ir

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