22q11 Ireland

Why Integrated Care for Rare Diseases matters

By Niamh Daly Day / February 28, 2024
Why Integrated Care for Rare Diseases matters The last day of February was chosen as The World Rare Disease Day - because it is a rare day in itself, that every four years we get an extra day. 2024 is indeed a Leap Year so we celebrate this World Rare Disease Day with special emphasis… Read More

CONFERENCE ABSTRACTS: Developing integrated care in the context of rare chromosomal conditions: 22q11 Deletion Syndrome; A parent/clinician collaboration.

By Admin / October 17, 2017

Developing integrated care in the context of rare chromosomal conditions: 22q11 Deletion Syndrome; A parent/clinician collaboration.
Authors: Anne Lawlor , Lorna Kerin, David Orr, Ronan Leahy, Fiona Crotty, Suzanne Kelleher, Sally Ann Lynch, Laura Du

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