Our Lady's Children's Hospital Crumlin

CONFERENCE ABSTRACTS: Developing integrated care in the context of rare chromosomal conditions: 22q11 Deletion Syndrome; A parent/clinician collaboration.

By Admin / October 17, 2017

Developing integrated care in the context of rare chromosomal conditions: 22q11 Deletion Syndrome; A parent/clinician collaboration.
Authors: Anne Lawlor , Lorna Kerin, David Orr, Ronan Leahy, Fiona Crotty, Suzanne Kelleher, Sally Ann Lynch, Laura Du

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CONFERENCE ABSTRACTS: Hearing the lived experience of young women with a rare genetic disorder 22q11.2DS regarding integrated care

By Admin / October 17, 2017

Hearing the lived experience of young women with a rare genetic disorder 22q11.2DS regarding integrated care
Authors: Lorna Kerin , Fiona McNicholas, Aine Lawlor
Abstract
Introduction: The lived experience of young people with chronic disease has sel

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