Yvonne Zurynski

Thinking outside our own silos to strengthen integrated care for people living with a rare disease – a health system simulation workshop

By Niamh Daly Day / July 5, 2024
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Rare diseases are complex, life-long, and many have no definitive cure. People living with rare disease experience inequitable access to needed health care and require care from multiple health care teams and support services across multiple locations. On top of this, they experience fragmented care, with convoluted care journeys, largely due to the fragmented and…