Actioning Person Centred Care
Purpose
This special interest group (SIG) was formed in 2024 to bring together a group of people from across the globe and create a community focused on putting person centred care (PCC) into action. Our global agenda is to 1) improve how organizations within and across health and social care systems learn from and act on service users’ experiences and 2) build partnerships for research and policy to advance change.
Key documents
Members
This SIG has approximately 80 members across eight countries. This group includes patients, caregivers, health and social care providers and service leaders, researchers, students/trainees, community members and volunteers.
Objectives
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Come together around our shared vision of PCC to create meaningful change in both health and social systems. Together, members of the SIG-APCC will:
- Optimize ways to capture patient and caregiver voice (different methods, tailored to needs)
- Build relationships with decision makers, providers, patients and caregiver to learn together
- Engage change makers to move experience into practice
- Invest in resources and structures to better engage patients and families, identify and implement needed changes
- Integrate across systems and sectors (mechanisms to share information, create networks for continuous improvement)
Activities
The SIG provides a platform for members to share implementation experience, highlight promising practices, signpost practical resources, and collaborate on research, education and evaluation priorities for actioning person centred care (PCC). Members will shape the scope of SIG activities and outputs.
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Evidence reviews to create an inventory of PCC best practices
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Webinar series highlighting PCC best practices
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Involvement in advocacy for PCC
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Presence at IFIC conferences and involvement in workshops
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Share/develop resources, guidance and tools
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Curriculum development on how to action PCC
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Collaborative project proposals
ICIC25 Workshop
Future Webinars
Past Webinars
If we value patient and carer perspectives, why aren’t organisations taking them to heart?
Get involved
If you have an interest in actioning person-centred care please send your name; organisation; role and contact details to Kerry Kuluski (kerry.kuluski@thp.ca) or Michelle Marcinow (michelle.marcinow@thp.ca).
Please send Michelle your news items, case studies, links to reports and practical resources to share on the SIG page.
SIG Co-Leads
Kerry Kuluski
Inaugural Dr. Mathias Gysler Research Chair in Patient & Family Experience and Scientist
IBH
Associate Professor
IHPME
Michelle Marcinow, PhD
Trillium Health Partners
Institute for Better Health
Emily Cordeaux
Institute of Health Policy, Management and Evaluation
University of Toronto
Kelly Smith
Michael Garron Hospital and Associate Professor
Co-Lead for Outcomes & Evaluation in the Institute of Health Policy, Management, & Evaluation at the University of Toronto
Prof Robin Miller
Department of Social Work and Social Care, University of Birmingham
UK Demonstrator Lead, IMPACT
Co-Editor in Chief
The International Journal of Integrated Care
Caroline Jackson
Department of Social Work and Social Care, University of Birmingham