Palliative and End of Life Care SIG
Aim: to facilitate collaboration across disciplines and across countries to enhance our understanding, adoption and evaluation of palliative and end of life care as a key component of people centred integrated care.
Activities: The SIG will provide a platform for members to share implementation experience, highlight examples of good practice, signpost practical resources, and agree and collaborate on research, education and evaluation priorities for integrated palliative care. Members will shape the scope of SIG activities and outputs. These may include:
• Webinars and online peer support
• Good practice case studies
• Practical resources – guidance and tools
• Study visits
• Evidence reviews
• Consensus documents
• Collaborative action research
Current topics: The initial focus of the SIG will be an integrated and public health approach to palliative and end of life care to improve the health and wellbeing of people facing potentially life-limiting illness, loneliness, dying, death and bereavement. Innovative examples are Todos Contigo, led by the Newhealth Foundation in Seville, and Compassionate Inverclyde, a collaborative programme in Scotland; both building social movements around people-led, assets-based approaches to compassionate citizenship and integrated palliative and end of life care. Our second topic will be to share experiences and evidence of integration that really works for people in Advanced Care Planning (ACP), supporting choices and preferences to be realised and central to decision making at both practice and organisational systems level. Our third topic will be to share experience on the development and use of person centred outcome measures in Palliative and End of Life Care.
Get involved:The SIG is for practitioners, managers, researchers, students, and policy makers engaged in planning, designing, delivering or evaluating palliative and end of life care in different health and care systems. If you have an interest in palliative and end of life care, can share your practical experience or resources, or have a question, challenge or suggestions for future SIG activities please contact Anne Mills, SIG facilitator at Anne.Mills@hospice.org.im
This Special Interest Group (SIG) has an international membership with 131 members and still growing. If you would like to be on the mailing list for this group, please email Marie Curran: IFICScotland@integratedcarefoundation.org and you will receive SIG updates, IFIC Scotland newsletters and information on our webinars.